Keiley Broadhead, from St Neots, is mum to Bowen Bantock who was born with a rare chromosome abnormality and she is desperate to raise money to support his current and future needs. Bowen's family do not yet know how severe his medical conditions could become. They have no idea if he will ever be able to walk and talk, which is something that Keiley has described as "torture".
His "one-of-a-kind chromosome deletion" is the largest deletion of the 10pa chromosome recorded on the global database used by Addenbrooke's Hospital. It means that Bowen is fed via a tube through his nose and into his stomach, he wears hearing aids in both of his ears and he has a musculoskeletal weakness. Bowen was also born with an upper limb difference, and he only has one kidney.
Bowen was born with several medical conditions as a result of a chromosome deletion. (Image: Keiley Broadhead) Keiley and her family were unaware of the extent of Bowen's medical conditions before he was born. She said: "When we went for the 12-week scan everything was fine, there was no concerns, so we were really happy.
"It got to his 20 week scan and they told me that Bowen wasn’t in a great position for the scan. I wasn't worried as I'd been told this before with my other son, Ralph." Keiley was then told that the ultrasound was not picking up Bowen's right hand.
A follow up scan confirmed that Bowen would be born without a right hand. "It was a shock and wasn’t what you expect, but I got in touch with a charity ca.
