Share this Story : How perinatal palliative care at Roger Neilson Children’s Hospice is helping families to heal Copy Link Email X Reddit Pinterest LinkedIn Tumblr Breadcrumb Trail Links News Local News How perinatal palliative care at Roger Neilson Children’s Hospice is helping families to heal Ottawa's children's hospice was the first to offer perinatal palliative care for families of babies who died during pregnancy or soon after. Get the latest from Elizabeth Payne straight to your inbox Sign Up Author of the article: Elizabeth Payne Published Oct 31, 2024 • Last updated 12 minutes ago • 5 minute read Join the conversation You can save this article by registering for free here . Or sign-in if you have an account.
Lesley Sabourin, Perinatal Hospice co-ordinator, poses for a photo at Roger Neilson Children's Hospice in Ottawa. Photo by Tony Caldwell / Postmedia Article content In 2020, Julie and Michael Kelly received shattering news. As a result of a routine ultrasound, they learned the baby Julie was carrying had severe abnormalities.
Further testing revealed their baby, Cara, had the life-limiting genetic condition known as Trisomy 18 and would live only a short time after birth — if she lived that long. The Arnprior-area parents of three older children were devastated. They didn’t want to terminate the pregnancy, which they knew was an option, but they worried a decision not to terminate would cause unnecessary suffering to their daughter.
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