Alfie Lund, 16, who has MECP2 Duplication Syndrome, has received 2,962 scarves from as far away as Iceland and Togo since a plea went out nearly ten years ago. Advertisement Advertisement Alfie was only the seventh child in the country to be diagnosed with the life-limiting condition, which is so rare it took four years for him to be correctly pinpointed. Did you know with a Digital Subscription to Lancashire Evening Post, you can get unlimited access to the website including our premium content, as well as benefiting from fewer ads, loyalty rewards and much more.
Dad Mark, together with Alfie's brother Cam, had the idea of collecting scarves to raise awareness of the condition and initially put the call out to football clubs who responded in droves. And since then, fans from around the world have also been sending scarves - which have taken over several rooms of their home in Burscough, West Lancashire . Advertisement Advertisement "Word of mouth is huge for us, people are very generous," said former DJ Mark.
“People tend to send a scarf from their club, others put posts out asking their friends to donate and they send several together. Clubs also get in touch and send scarves. “We were getting packages three times a day at one point.
“We probably have the best-insulated house in West Lancashire.” Advertisement Advertisement Notable scarves include Alfie's favourite from German team Duisburg and a one-of-a-kind handmade edition featuring his face from Hungarian scarf.