PSPA launched a new web page today to help young people who have family members with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) to gain a better understanding of the conditions. The information was developed in collaboration with a Young Person’s Advisory Group. This group ensured the information was pitched at the right level and answered all the questions young people might have about the conditions their family members are living with.
Advertisement Advertisement Did you know with an ad-lite subscription to Milton Keynes Citizen, you get 70% fewer ads while viewing the news that matters to you. The Young Person’s Advisory Group currently has eight members, aged between 9 and 17 years old, and they met online monthly over a six-month period to write the information and feedback on designs for the web page Group members included: Charlie Lister, Coen Maric, Emily Blackwell, Jessica Roberts, Kian Chauhan, Lucy Sutcliffe, Jessica Tarr and Aurelia Tarr. Key features of the new web information include clear diagrams explaining where PSP & CBD develop in the brain, answers to essential questions and voice notes from members of the advisory group sharing details of their experiences.
Although the web information is now live, developments will continue to ensure young people are able to find the information and help they need after a parent, grandparent or Aunt or Uncle are diagnosed with PSP or CBD. Future developments could include podcasts, an a.