I watched my grandmother die slowly with an incurable brain disease - then I learnt my mother and I have it too Charlotte Conn, from Teesside, has been diagnosed with Huntington's disease Read More: Newlywed, 32, discovers she has Huntington's disease By Ellen Coughlan For Mailonline Published: 05:23 EDT, 5 August 2024 | Updated: 05:36 EDT, 5 August 2024 e-mail View comments A woman who watched her grandmother deteriorate due to a rare, incurable brain disease later learnt she and her mother face the same fate after being diagnosed with the same illness. Charlotte Conn, from Teesside, North East England, already knows what the future is likely to hold for her as she has watched her great-grandmother, her own grandmother, and now her mother battle Huntington's disease. The inherited condition stops parts of the brain from working properly over time, with symptoms often developing between the ages of 30-50, and is usually fatal after a period of up to 20 years.
After her grandmother Lin was diagnosed in 2002, her mother Elaine waited two years before also getting tested – which was positive. After Lin passed away in 2021, Charlotte finally bit the bullet and got herself tested in early 2023. Charlotte Conn, from Teesside, North East England, who lost her grandmother to a rare brain disease, which her mother also has, has been diagnosed with the same condition While helping care for her mother, she was given the devastating news that she also has Huntington's.
Charlotte, who i.