A family has shared their gratitude for the support they received from a Wrexham hospice after a rare diagnosis. Peter Taylor was diagnosed with Progressive Supranuclear Palsy (PSP), a rare neurological condition, four years ago. His family, including his daughter Katie Taylor, a nurse, faced an uncertain journey due to the complexity of his care needs.
Ms Taylor was unsure if there were any services in the area that could specifically help with PSP. However, after making a self-referral on her father's behalf, Mr Taylor began accessing a range of services at Nightingale House Hospice. These included rehabilitation, complementary therapy, the Wellbeing Programme, and respite care.
These services provided crucial relief for both Mr Taylor and his family during his illness. Ms Taylor said: " Nightingale House was the one place my family felt happy and safe leaving my dad, Peter, knowing he would be looked after. "When he was staying for respite, my family and I often visited, and we could push him out into the garden so he could enjoy the fresh air - a luxury you don’t realise you have until it’s taken away.
" She also shared a touching memory of a doctor watching a football match on TV with her father so he wasn't alone, saying: "That level of kindness and attention meant so much to us." Pat and Peter Taylor (Image: Nightingale House Hospice) Progressive Supranuclear Palsy is a rare and often misdiagnosed condition, frequently mistaken for Parkinson’s disease. Through Mr .