A family in Queensland, Australia, is faced with selling their dream home to raise funds for their daughter’s life-saving therapy, which will cost a staggering $3 million. Tallulah Moon, 5, has been diagnosed with SPG56, a degenerative brain disease that is caused by a rare gene mutation. Tallulah was a healthy, happy baby until shortly after her first birthday, when she suddenly began to lose her motor skills.
“She was hitting all of her milestones, and then suddenly she experienced a really steep regression — her abilities sort of fell like an avalanche off the cliff, and it was terrifying,” Golden Whitrod, Tallulah Moon’s mother, told Fox News Digital during an on-camera interview. “She went from a little girl who was walking and talking to suddenly not even being able to sit up on her own, not being able to lift her arms above her shoulders or hold up her neck,” Whitrod said. Swallowing and choking also became a concern.
“We’d gone from watching this beautiful child thrive at 14 months, to regressing to the abilities of a 4-month-old,” Whitrod recalled. Tallulah Moon was also terrified, unable to comprehend the loss of her abilities. “I remember her looking at us as if to say, ‘Why can’t you help me?’” her mother said.
“And I could feel that as a parent. I just didn’t know what to do.” A devastating diagnosis At first, Whitrod hoped there would be an easy fix for whatever was causing Tallulah’s decline.
After six months of testing and.