Applications for the independently assessed, expert-led Research Grant Initiative , Find For Rare, are open from today, with experts calling for innovative research to broaden the level of understanding into three lysosomal storage disorders and, ultimately, improve patient care and management. Researchers can apply for grants up to €50,000 – the research grants are designed to support original research projects that aim to advance knowledge in the field of: Fabry disease, alpha-mannosidosis, and cystinosis. All applications will be independently reviewed and assessed by a Steering Committee of leading experts in the lysosomal storage disorders field, who have been identified, contracted and funded by Chiesi, with the successful applicants announced in Q1 2025.
PARMA, Italy , Sept. 9, 2024 /PRNewswire/ -- Chiesi Global Rare Diseases, a business unit of the Chiesi Group established to deliver innovative therapies and solutions for people living with rare diseases, has today announced a new Research Grant Initiative , Find For Rare . Researchers are invited to apply for grants up to €50,000 to support their research into lysosomal storage disorders (LSDs).
LSDs are inborn errors of metabolism, rare genetic disorders characterized by defective functioning of lysosomes. 1 Whilst the disorders can be rare individually, their prevalence is significant at a global level with an estimated 1 in 8000 people diagnosed. 1 To address current gaps in understanding, Chiesi Global Rare.