Here, four Kiwis share their experiences of losing a loved one at a young age . Jenny Zilmer’s daughter Lumi was born in Estonia with a rare and severe heart defect . Before she could be flown to Starship hospital in New Zealand for treatment, she died at just 3 months old.

Zilmer and her husband Mikhel, who is originally from Estonia, decided to move back to New Zealand along with their older daughter Nora as they came to terms with their loss . ‘Something that society is not equipped to deal with’ “The medical treatment [in Estonia] was not up to par, so there was a lot of trauma around that,” Zilmer tells the Herald ..